DEMAND CHANGE – TOGETHER, WE CAN MAKE IT HAPPEN!
WE CAN DO THIS TOGETHER! TAKE ACTION NOW!
🚨 MOLD TOXICITY IS DESTROYING LIVES – IT’S TIME FOR ACTION! 🚨
Families are suffering. People are losing their health, homes, and hope because of toxic mold exposure. Yet, our medical system, insurance companies, and lawmakers continue to ignore the reality of mold toxicity.
Too many people are misdiagnosed. Too many doctors aren’t trained to recognize the symptoms. Too many insurance companies refuse to cover testing and treatment. Enough is enough.
That’s why I started this petition—to demand research, medical support, and real change. We deserve proper testing, treatment, and recognition of mold toxicity as the serious public health crisis it is.
✊ WE CAN’T DO THIS ALONE. WE NEED YOUR HELP.
🔹 Sign the petition now! – Scan the QR code or click the link below.
🔹 Share this with everyone you know – The more signatures we get, the harder we are to ignore.
🔹 Let’s show the world we won’t be silenced!
💡 Change starts with us.
One signature at a time. One voice at a time. One movement demanding action.
📢 SIGN. SHARE. SPEAK UP. TOGETHER, WE WILL MAKE A DIFFERENCE.
🔗 Sign here: www.change.org/allsurvivorsunite
💬 Disclaimer: This petition is my personal fight for mold toxicity awareness and action. I’ve lived this nightmare, and I know too many others who are still suffering. This is our chance to push for change—for ourselves, for our families, and for future generations.
Help Raise Awareness
Please help us spread the word! With this easy copy & paste letter.
Ask influencers to share our petition. Demand Change and more!
"To Whom It May Concern" Letter (Editable for Outreach)
Subject: Help Raise Awareness for Mold Toxicity
[Insert Name],
Mold toxicity is silently affecting millions of people, yet it remains one of the most misunderstood health crises of our time. Many of us have been misdiagnosed, dismissed by doctors, and left to suffer alone—until we finally discovered the truth.
Mold exposure can lead to chronic illness, neurological symptoms, autoimmune disorders, and severe mental health struggles. Many are forced to leave their homes, spend their life savings, and fight for basic medical recognition. We need change. We need voices that will bring this issue into the public eye.
This is why we are reaching out to you. Your voice, your platform, your willingness to listen—could make a real difference.
🌱 How You Can Help:
✔ Share our stories to bring awareness to this hidden epidemic.
✔ Speak out about the dangers of mold toxicity and how it’s often misdiagnosed.
✔ Encourage research, better medical care, and insurance coverage for those suffering.
✔ Visit All Survivors Unite to learn more.
We are not alone, but we need the world to know we exist.
Thank you for taking the time to read this. Your support could truly change lives.
With hope,
[Your Name]
[Your Contact Info]
Celebrity/Influencer List (Known to Have Experienced Mold Toxicity):
🟢 Tori Spelling
🟢 Gwyneth Paltrow
🟢 Dr. Jill Carnahan (Functional Medicine Doctor & Mold Survivor)
🟢 Erin Brockovich (Environmental Activist)
🟢 Demi Moore
🟢 Kelly Dodd (Real Housewives of OC)
Instructions for Community Outreach:
1️⃣ Copy & Paste the above letter then personalize it.
2️⃣ Send it to celebrities, influencers, and advocates via email, social media, or fan mail.
3️⃣ Tag them on Instagram, Facebook, Tik Tok, BlueSky and use these hashtags:
#MoldToxicityAwareness #MoldSurvivorsUnite #MoldKills
4️⃣ Comment on their posts and mention mold toxicity awareness.
5️⃣ Visit https://allsurvivorsunite.com/ for more ways to help.
Facebook Post Idea to Mobilize the Community:
📢 CALL TO ACTION: Help Us Raise Awareness for Mold Toxicity! 📢
Mold illness is real, but most people don’t know until it’s too late. We are often dismissed by doctors, ignored by insurance, and left to fight for our health alone.
It’s time to change that.
💡 We need YOUR help!
Let’s reach out to celebrities, influencers, and advocates who can use their platforms to make a difference.
1️⃣ Copy & paste our “To Whom It May Concern” Letter. Edit it to make it personal.
2️⃣ Send it to celebrities who have spoken about mold toxicity.
3️⃣ Tag them on social media and use the hashtags:
#MoldToxicityAwareness #MoldSurvivorsUnite #MoldKills
4️⃣ Share this post and encourage others to take action.
5️⃣ Visit https://allsurvivorsunite.com/ to learn more and get involved.
Together, we can bring mold toxicity into the public eye. Let’s do this! 💪💚
You can also share this Facebook post.
Click the image to download the flyer.
Handling the Negativity
How to Respond to Negative Reactions About Mold Toxicity
When you are facing negative responses, facing skepticism and dismissive comments can be challenging, especially when they come from doctors or close family members. The key is to stay calm, be firm, and choose the response that feels most appropriate for the situation. Remember, you don’t need to justify your experience to everyone, but it’s important to advocate for yourself and protect your well-being.
Here are some approaches that offer flexibility for different interactions, use these as a guide to help you find your words.
1. Statement: “Mold doesn’t make me sick, so why is it making you sick?”
Response 1: "Everyone’s body reacts differently to mold. Some people can tolerate it, while others, like me, have a more sensitive reaction."
Response 2: "Our bodies are unique, and unfortunately, mine happens to be more vulnerable to the effects of mold."
2. Statement: “It’s all in your head.”
Response 1: "My symptoms are very real and have been validated by specialists. It’s a complex condition that goes beyond mental health."
Response 2: "I understand why it might seem that way, but I assure you, this is very real for me. I wouldn’t want anyone to experience what I’m going through."
3. Statement: “Mold doesn’t make people sick.”
Response 1: "Actually, mold can produce mycotoxins that are harmful to human health. Not everyone reacts the same, but for some, the effects can be serious."
Response 2: "I used to think that too, but after learning more, I’ve discovered that mold affects people differently, and unfortunately, I’m one of those who reacts severely."
4. Statement: “Penicillin is a mold, and it’s used to cure people, not make them sick.”
Response 1: "Penicillin is a specific type of mold, most molds are not beneficial. Some produce toxins that can cause serious health issues."
Response 2: "That’s true about penicillin, but not all molds are the same. Some, like the one I’ve been exposed to, can be harmful."
5. Statement: “If you would just get up out of bed, you’d feel better.”
Response 1: "My illness is more complex and isn’t something I can ‘push through’ without causing more harm. Rest is essential for my recovery."
Response 2: "I wish I could just get up and feel better. Unfortunately, this illness doesn’t work that way, and I need to listen to my body’s limits."
6. Statement: “You’re just being dramatic. It can’t be that bad.”
Response 1: "It might be hard to understand if you haven’t experienced it, but I assure you, my symptoms are severe and real."
Response 2: "I know it might seem exaggerated, but what I’m going through is very real and has been extremely challenging."
7. Statement: “If mold is so bad, why isn’t everyone sick?”
Response 1: "Sensitivity to mold varies from person to person. Some people can live in moldy environments with no symptoms, while others can become very ill."
Response 2: "Everyone’s body handles mold exposure differently. I happen to be one of the people who reacts strongly."
8. Statement: “You’re exaggerating. It’s probably just allergies.”
Response 1: "My condition goes beyond typical allergies. It’s been diagnosed as mold toxicity, which affects my entire body."
Response 2: "I wish it were just allergies, but it’s more complicated than that. My body’s reaction has been much more severe."
9. Statement: “Just clean up the mold, and you’ll be fine.”
Response 1: "Cleaning visible mold is important, but mold can hide in places you can’t see, and the toxins can linger in the environment."
Response 2: "I’ve done my best to clean it, but mold is tricky. Even when you can’t see it, it can still cause problems, and I need help addressing that."
10. Statement: “You’ve always been a hypochondriac.”
Response 1: "I know my health history, and this is different. Mold toxicity is a documented illness that’s affecting my life in serious ways."
Response 2: "I understand why you might think that, but this time, something is seriously wrong, and it’s more than just worry. I need to take it seriously."
Be Your Own Advocate!
Practical Tips for Being Your Own Health Advocate
- Document Everything: Keep a detailed log of your symptoms, medical visits, and any communication with healthcare providers. Documentation is your best tool in advocating for your health.
- Research and Be Informed: Educate yourself about mold toxicity and your symptoms. Being informed helps you ask the right questions and push for the correct tests and treatments.
- Don’t Go Alone: Bring a trusted friend or family member to appointments. They can provide support, take notes, and help you advocate for yourself.
- Dress for the Occasion: As unfair as it may seem, doctors often judge your appearance. Avoid dressing up for appointments; the better you look, the less sick they may perceive you to be.
- Ask for a Second Opinion: If you’re not getting the help you need, don’t hesitate to seek a second (or third) opinion. Sometimes, finding the right doctor can make all the difference.
- Don’t Be Afraid to Speak Up: If a doctor dismisses your concerns, be firm but respectful. Let them know that you won’t accept being brushed off and that you expect your symptoms to be taken seriously.
- Know Your Insurance: Call your insurance company directly to verify what tests and treatments are covered. If a doctor refuses to order a test, knowing your coverage details can help you push back.
- Get a Care Advocate: Many insurance companies offer care advocates who can help you navigate the healthcare system, find specialists, and ensure you get the care you need.
- Don’t Accept “No” as a Final Answer: If a doctor refuses a test or treatment, ask why and request alternatives. Sometimes persistence is necessary to get the care you deserve.
Final Thoughts:
Advocating for your health can be exhausting, especially when you’re already dealing with debilitating symptoms. But it’s crucial to stand up for yourself and demand the care and attention you deserve. Remember, you know your body better than anyone else, and you have the right to be heard, respected, and treated appropriately.
My Mold Warrior Story
From 'No One Believes Me' to 'Demand Quality Care': Michelle's Mold Warrior Story
A year ago, I sat behind a screen typing out a post on a forum, desperate and sick, trying to piece together my mystery illness. I’d just watched a documentary and thought, "Why won’t my insurance cover the one test that could give me answers? Why are they spending so much more money keeping me sick instead of helping me heal?" My body was screaming—lungs inflamed, infections spreading—and I was spiraling. I had just been told I had breast cancer, only to later find out it was an infection caused by mold. Nobody believed me. I was told it was all in my head. I was told I was just anxious. Or hormonal. Or dramatic.
Today, that same woman—me—is running a resource network for mold survivors. I was able to get my insurance to cover RealTime Labs urine testing for mold and all of my functional doctor visits. I found a mold-literate doctor in network. I learned how to advocate. I stopped waiting for permission to get better. I created a website, a support group, and a movement.
Now, I help others do the same.
This is what advocacy looks like.
I went from pleading with doctors to being the one connecting survivors to resources, protocols, and hope. I learned how to speak the language insurance companies and doctors understand. I realized that healing is not just about binders and detox.
It’s about validation. It's about reclaiming your story.
And now, I say this with strength:
Demand quality care! You are worth it!
Not everyone is going to understand your journey, but that doesn’t make it any less valid.
You are not alone.
We are building a new system together—one blog post, one denied test appeal, one survivor story at a time.
—Michelle Lincomfelt
Founder, All Survivors Unite
Want help with your own story or advocacy efforts? Please reach out and join and follow me on social media.
Kioni’s Law : Protect Families Against Toxic Mold
WE CAN’T DO THIS ALONE. WE NEED YOUR HELP
🚨 WE NEED CHANGE – TOGETHER, WE CAN MAKE IT HAPPEN! 🚨
Families are suffering. People are losing their homes, their health, and even their lives because of toxic mold exposure. Yet, the system is failing us. Too many doctors dismiss it. Too many landlords ignore it. Too many families are left to fight alone. Enough is enough.
It’s time to come together and demand real, lasting change. Kioni’s Law is a step toward protecting families from the devastating effects of toxic mold. This petition calls for better regulations, accountability, and awareness to prevent more lives from being destroyed.
✊ WE CAN’T DO THIS ALONE. WE NEED YOUR HELP.
🔹 Scan the QR code below to sign the petition.
🔹 Share this with everyone you know.
🔹 Let’s show the world we will no longer be silenced!
💡 Change starts with us. One signature at a time. One voice at a time. One united movement demanding action.
📢 SIGN. SHARE. SPEAK UP. TOGETHER, WE WILL MAKE A DIFFERENCE.
💬 Disclaimer: This is not my petition, but I fully support the mission behind it. Kioni’s Law was started by another dedicated advocate fighting for mold awareness and change. My goal is to amplify this important cause and help spread the word so we can push for real action.
Knowledge is Power!
Practical Tips for Being Your Own Health Advocate
MRI with Contrast (Gadolinium-based)
Gadolinium-based contrast agents (GBCA) used in MRI scans can be harmful to individuals with mold toxicity or other chronic illnesses. Gadolinium is a heavy metal, and in some cases, it can remain in the body, particularly for those with compromised detox pathways or kidney issues. Over time, gadolinium can deposit in the brain and bones, potentially leading to a condition called Gadolinium Deposition Disease (GDD), which manifests with symptoms such as pain, cognitive issues, and skin changes.
Why avoid it?
Those with mold-related conditions often already have impaired detoxification systems, which may exacerbate the effects of gadolinium retention. GDD symptoms can compound the existing mold illness symptoms.
Alternative:
Ask your healthcare provider if an MRI without contrast would provide adequate information for your situation, or explore non-MRI imaging options if contrast is deemed necessary.
CT Scan with Iodine-Based Contrast
CT scans use ionizing radiation, which can be harmful in large amounts over time, though the risks are relatively low for occasional scans. However, the primary concern with CT scans for individuals with mold illness lies in the iodine-based contrast dye.
Kidney Issues: Iodine-based contrast agents can strain the kidneys, especially for people who already have impaired kidney function due to mold exposure or other toxins. In some cases, it can lead to a condition called contrast-induced nephropathy (CIN), which is a sudden deterioration of kidney function after the use of contrast dye.
Why avoid it?
People dealing with mold toxicity often experience kidney stress from ongoing detoxification efforts, and the additional strain of iodine-based contrast can worsen this.
Alternative:
Ask your doctor if non-contrast CT scans or alternative imaging methods, like ultrasound or MRI without contrast, are viable options for your case.
Steroids
Steroids, such as prednisone, are often prescribed for inflammatory conditions, but for people with mold toxicity, they can suppress the immune system in ways that can backfire.
Why avoid them?
Mold-exposed individuals may already have weakened or compromised immune systems. Steroids can suppress the immune response, potentially allowing fungal infections to worsen, as they weaken the body’s ability to combat mold colonization or other infections.
Alternative:
Discuss anti-inflammatory alternatives, like non-steroidal anti-inflammatory drugs (NSAIDs), or explore natural anti-inflammatory options like turmeric or quercetin with your doctor.
Additional Medications to Be Cautious About
1. Antibiotics (overuse):
While necessary for bacterial infections, frequent use can disrupt the gut microbiome, which is crucial for immune function and detoxification. Antibiotics should be used judiciously, especially for those recovering from mold exposure.
2. Fluoroquinolone antibiotics:
These are known to have potential side effects, including tendon damage and nervous system issues. People with chronic health conditions like mold illness may be more vulnerable to these effects.
3. Immunosuppressants:
These medications may be prescribed for autoimmune conditions but can leave mold-sick patients more susceptible to fungal overgrowth or infections.
General Recommendation
Always discuss potential tests and medications with your healthcare provider to assess whether they are safe, given your mold-related sensitivities. Opt for alternatives whenever possible, and ensure thorough kidney function monitoring if contrast agents are necessary.
A New Symbol for Survivors of Mold, Trauma, and Chronic Illn
Join the Movement for Healing and Hope
Join the Movement for Healing and Hope
Join the Movement for Healing and Hope
Become a part of a community that understands.
Your story matters. Your voice matters.
Together, we are rewriting the narrative of healing and hope.
Learn. Connect. Advocate.
Join the Movement for Healing and Hope
Join the Movement for Healing and Hope
Awareness grows stronger when we come together.
Stay connected through upcoming gatherings, workshops, and projects
— designed to inspire, educate, and uplift.
⬇️ Want to see all causes and colors? Click the button below ⬇️
We searched for a ribbon that could honor the unique challenges survivors of mold, trauma, and chronic illness face. There wasn’t one. So we created the Olive + Teal Awareness Ribbon: a blend of strength (olive) and healing (teal), woven together like the journey of body, mind, and spirit.
Project E.V.I.E - Every Voice Is Equal
The more you know, the quicker you can heal.
Disclaimer
I am not a medical professional.
I am a survivor of chronic illness. I know my body, and I trust my instincts about what feels right and what doesn’t,
AND your well-being depends on doing the same.
The information provided here is based on my personal research and experiences. Remember, everyone’s body is different, and what works for one person may not work for another. I strongly encourage you to conduct your own research, consult with healthcare professionals, and find the approach that works best for you.
Your health is unique, and it’s important to make informed decisions that are tailored to your individual needs.
This site will be updated along my journey, so be sure to check back often.